Flaming June's Love

Did you ever get the feeling that you were on the edge of something totally new?  I am, for sure. Been visiting U Penn Hospital.  They are top 5 in the country.  So since I really want to live, We decided to make an appt.  The first appt went really well with the Dr.  Nice guy, not terribly over concerned super smart.  Second appt stress tests and vascular studies yesterday.  I felt good last night.  Now  since the Dr called this morning at 830, I am feeling just tired. I have to go back to Philadelphia for a catheterization next Friday.  I knew this was coming.  I know it is the one way to actually SEE what is going on with the grafted vessels, and what may be happening with any vessels that weren't grafted.  This is a good thing.  right?  I am confident that the Dr. I am seeing is one of the best in the country.  He will guide us to the best recovery and therapy possible. I just don't like the reminder of m...

Amazing things have happened at my house these past few days. first of all the last post concerning Jack and his ISM's, well they are what they are and he is doing so exceptionally well lately.  Took him to his cousins birthday party last weekend and he had a great time.  He chatted with some people and really had fun. His tball is going very very well.  He is having fun and following directions.  Good Job Jackie BOY! He was visiting his friend Michael up the street the other day after school.  He had had such an awesome day that I told him he was ready for a big boy reward at the end of his play date.  He was allowed to walk home "alone" from Michael's house-just like big boys do. Remind you that Michael lives three doors up the street and both his mother and I watched Jack walk the three doorbells to reach ours.  He marched down river street smiling a huge smile, carrying his ds bag under his arm.  I maintained eye contact with him the entir...

Really?  Oh How interesting...  Well, Isn't that exciting!  You have GOT to be kidding?! I took Jack to a swimming party  last Friday night, which was for one of his classmates.  It was a lovely party at the YMCA.  Swimming, cake, pizza, a few party games.  He really loved it. Me... well, you know. "Blah blah blah, yuckity yuck, buzz click, yadday yadday yadday." Let me make a few things clear though, the Moms and Dads I met were very nice people.  I actually enjoyed their company.  We chatted about Birthday cake, t-ball and swimming lessons.  All very nice.  Marvelous. The issue for me is though... I am the parent with the child in the class who has a TSS worker. I am the parent with the special needs kid. I am on constant lookout for any sign of judgement.  I am running at a 7 at all times on the "mamabear" scale.  I am also the Mom that has been around the block a few times here.  I've been doing the Mommy ...